what I learned about dying from my family

My mother passed away this past February from dementia. My father passed away from Frontotemporal Dementia in 2014. My brother passed away from cancer this past summer and my mother-in-law also died after an extended illness two years ago. There have been many deaths in my family… too many… I first witnessed death over forty yearsContinue reading “what I learned about dying from my family”

what is frontal temporal dementia?

  Viewing this via email? Click here to view the video. I attended a family seminar on Frontal Temporal Dementia (FTD) and Primary Progressive Aphasia (PPA) yesterday at the Mayo Clinic in Rochester, MN. It was of particular interest to me as my family carries the familial gene for FTD. I learned a lot, probably more thanContinue reading “what is frontal temporal dementia?”

if the monster wants you…

Thank you Alanna for being real. I am comforted. This talk touched me on so many levels – both my story and my experience as the daughter of parents who both dealt with issues related to dementia. As I wrote in my last post, I have a familial gene for Frontal Temporal Dementia (FTD)….. and likeContinue reading “if the monster wants you…”

living “what is”

  Oh my, I have not written anything on this blog in almost a year. I didn’t realize that I have been away for so long… Much has happened this past year. Some good… some not so good. I will recap my year very briefly to give context for this blog post’s title. A yearContinue reading “living “what is””